Predictive genetic testing in children and adults: a study of emotional impact
Genetic testing in adults is complex and raises ethical unsolved dilemmas in children is even more complicated. According to the guidelines proposed by the World Health Organization (1998): "Genetic testing should only be made in children when their purpose is to improve your health care". Although it gets well established that it is the decision of a competent individual to submit or not to carry out tests to define his genetic status, they may be performed in children whose parents or health professionals who care for them have requested (Corrine, 2004, pp. 875).
The major strength identified in this study is that it would be appropriate to make use of genetic testing to confirm a medical diagnosis in a child symptomatic as part of their health care. But, the weakness identified is that it is difficult, however, be able to predict when children whether genetic tests conducted during childhood will be beneficial for him in adulthood
Impact of Presymptomatic Genetic Testing for Hereditary Ataxia and Neuromuscular Disorders
A study conducted by Smith et al. (2004) was aimed at investigating the psychosocial affects of hereditary testing for autosomal leading types of inherited ataxia and neuromuscular disorders. For this purpose, the data gets collected from the university setting from the respondents who had previously undergone hereditary therapy and DNA testing. Respondents filled out three questionnaires prior to testing and at standard gaps subsequent to testing. According to the study, seventy-eight percent of the participants completed six months to five years of post test follow-up. General causes for following genetic testing were to give a clarification for signs, expressive release, and information for upcoming plans. Moreover, the study also revealed that sixty-eight percent of the respondents had affirmative, and thirty-two ...