Exploring physical disability experience in the social context (IPA)
(Case Studies of individuals with a type of Muscular Dystrophy-Duchene)
by
ACKNOWLEDGEMENT
My thanks go out to all who have helped me complete this study and with whom this project may have not been possible. In particular, my gratitude goes out to friends, facilitator and family for extensive and helpful comments on early drafts. I am also deeply indebted to the authors who have shared my interest and preceded me. Their works provided me with a host of information to learn from and build upon, also served as examples to emulate.
DECLARATION
I, [names and surname here], declare that the contents of this dissertation/thesis represent my own unaided work, and that the dissertation/thesis has not previously been submitted for academic examination towards any qualification. Furthermore, it represents my own opinions and not necessarily those of the University.
Signed __________________ Date _________________
ABSTRACT
The purpose of this study is to present rich textured, description of social experience of physically disabled persons (Duchene). This study provides an understanding the subjective experience of the participants and the impact that their relationship with the society have on their social experience as a disabled. To know and understand the knowledge, beliefs and practices of the society towards disability so as to establish the universal truth about disability and then isolate the positive practices that will promote a positive attitude of the society towards disability. Furthermore, as health and social care student, this research will give me insight into social policy and ethics as regards to disability also to recognize those policies that are essential in addressing issues of ethical dilemmas regarding physical disability in the social context. The significance of this study is to describe and gain a better understanding of the subjective social experience of physically disable person in relation to their interaction with the society and to highlight the prevailing situation being faced from this relationship. The study involves physically disabled individuals living in East London, which limits its overall scope. But it will go a long way in providing an insight into the social experience of a physically disabled person and will help to improve the right attitude towards the disabled in the British society.
TABLE OF CONTENTS
ACKNOWLEDGEMENTII
DECLARATIONIII
ABSTRACTIV
CHAPTER # 1: INTRODUCTION1
Background of the Study1
Problem of study2
Purpose of the study4
Aim and objectives of the study4
Rationale5
Research Questions5
Scope and Significance of the Study5
Structure of the thesis6
CHAPTER # 2: LITERATURE REVIEW8
Society and Disabilities8
Social Norms and Law10
Social Norms and Education15
Duchenne Muscular Dystrophy18
Physiological Changes18
Cognitive and Learning Disabilities19
Spirituality within DMD20
CHAPTER # 3: METHODOLOGY21
Research approach21
Interpretivism21
Sampling22
Sample of participants23
Instrument for data collection23
Data Analysis24
Preparation of data for analysis24
Presentation of data24
Reliability/Dependability24
Validity26
Ethical Considerations27
CHAPTER # 4: FINDINGS28
Introduction28
Analysis28
Case Analysis31
Interview Analysis34
Summary37
CHAPTER # 5: DISCUSSION AND CONCLUSION38
Discussion38
Research Question: What is the subjective social, experience of physically disabled person?38
Conclusion40
Future Research40
REFERENCES42
APPENDIX46
Interview Questions46
Proposed Interview Consent Form47
CHAPTER # 1: INTRODUCTION
Background of the Study
The muscular dystrophies represent a complex group of disorders largely characterized by progressive muscle weakness marked by myofiber fibrosis and necrosis that can affect respiratory and/or cardiac function leading to premature death. These disorders are usually caused by mutations that result in loss ...